London, July 26 IANS | 2 months ago

The proposed EU General Data Protection Regulation could make cancer research impossible and add a significant burden to cancer patients, the European Society for Medical Oncology (ESMO) has said.


The proposed wording of the regulation stipulates "explicit and specific patient consent", meaning that researchers would have to approach patients every single time research is planned in order to consult their data or use tissue samples stored for research purposes, ESMO, the leading pan-European association representing medical oncology professionals, contended.

"Hope for patients facing a life-threatening disease like cancer is based on advances in research," said Kathy Oliver, chair of the International Brain Tumour Alliance.

"Research progress requires access to a wide pool of patient data, even from patients who have since passed away and can no longer provide consent to allow for research that could save lives in the future," Oliver added.

This could put a halt to many public health research efforts, argued ESMO president Rolf A Stahel.

ESMO proposes that the text of the EU General Data Protection Regulation includes a "one-time consent" for research, ensuring patients are aware of what they are consenting to - with the appropriate safeguards in place, and that they can withdraw their consent at any time.

"Our proposal achieves the correct balance between the right to privacy and the right to health," Stahel continued.

It actually "empowers" patients, allowing them to choose whether to donate their data and tissue for public health research, whose ultimate goal is to find cures.

According to ESMO: "Adding the nearly impossible administrative burden of re-consenting each patient, every time, for every single project, could irreversibly slow down the accelerated pace that cancer research has gained over the past decades."

(Posted on 26-07-2014)

Share This Page:


Post your comments


Information on States of India:

Andaman Nicobar | Andhra Pradesh | Assam | Bihar | Chandigarh | Chhattisgarh | Dadar Nagar Haveli | Daman Diu | Delhi | Goa | Gujarat | Haryana | Himachal Pradesh | Jammu Kashmir | Jharkhand | Karnataka | Kerala | Lakshadweep | Madhya Pradesh | Maharashtra | Manipur | Meghalaya | Mizoram | Nagaland | Orissa | Pondicherry | Punjab | Rajasthan | Sikkim | Tamil Nadu | Tripura | Uttar Pradesh | Uttaranchal | West Bengal

INDIA REGIONAL MAPS:

Andhra Pradesh Travel Map | Bihar Travel Map | Goa Travel Map | Gujarat Travel Map | Haryana Travel Map | Himachal Pradesh Map | Karnataka Travel Map | Kerala Travel Map | Maharashtra Travel Map | Punjab Travel Map | Rajasthan Travel Map | Sikkim Travel Map | Tamil Nadu Travel Map | Uttar Pradesh Travel Map | West Bengal Travel Map |

MORE MAPS OF INDIA:

Airports of India | Districts of India | India Pilgrim Centers | Tourism Map of India | National Highways in India | India Railway Routes |

INDIA CITY MAPS:

Ahmadabad | Bangalore | Chennai | Coimbatore | Delhi | Hyderabad/Secunderabad | Kochi | Kolkata | Mumbai | Pondicherry | Pune | Surat |

KERALA TRAVEL MAPS:

Alappuzha | Ernakulam | Idukki | Kannur | Kasaragod | Kollam | Kottayam | Kozhikode | Malappuram | Palakkad | Pathanamthitta | Thiruvananthapuram | Thrissur | Wayanad |